The Anthem Award for Leader of the Year was awarded to Physician-Parent Caregivers for raising awareness through the Invisible Wave Movement. Nikhil created a safe community for young adults 18-35 with chronic health conditions. Read more here.
Key Work
Snapshots of some of our key work
Conducted a comprehensive national analysis on policies and systems of care for these young adults
(some call themselves Young Invisibles or "Yi”)
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Presented at national medical and health policy conferences
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Co-authored medical articles on emerging populations: children with medical complexities and young people with chronic conditions transitioning to adulthood
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Developed a white paper on Young Adults with Chronic Conditions and Disabilities
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Partnered with national organizations like Kaiser Permanente and The National Youth Transition Center to convene national policy roundtables
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Convened a multi-stakeholder national working group
Piloted a monthly parent group for one year
Where we found they wanted an in-person
and online forumfor themselves
Engaged Young Adults and Yi
Through practicums at Johns Hopkins University,
The Milken Institute at The George Washington University,
and internships at American University
Worked on on higher education legislation that led to a first of its kind Higher Education Workgroup Report
With then-Delegate Maryland Lieutenant Governor Aruna Miller, Senator Brian Feldman and Delegate Joseline Pena-Melnyk
Launched The Invisible Wave Movement for Yi
Worked with Senator Van Hollen to request the Centers for Disease Control and Prevention (CDC) to evaluate and prioritize Yi during the Covid pandemic
Held a virtual summit that featured PBS Anchor
Judy Woodruff, Senator Van Hollen,
and MSNBC Contributor Dr. Kavita Patel
Worked with Senator Van Hollen to include children and young adults in his landmark Improving Diagnosis in Medicine Act
Worked with Stuart Butler of the Brookings Institution, who penned the first piece on Yi for the Journal of the American Medical Association, to create a national working group
Check out our Youtube and
podcast on Young Men with Chronic Conditions!
Youtube: bit.ly/3sXjOLM
Podcast: bit.ly/3PoSYnl
